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Bipolar Disorder FAQs
l (Frequently Asked Questions)
---------------------------------------
| |
| Bipolar Disorder Frequently Asked Questions (FAQ) File |
| ------------------------------------------------------ |
| |
| |
| Version: 1.1 |
| |
| Release Date: 25 September 1996 |
| |
| Usenet Newsgroups: alt.support.depression.manic (ASDM) |
| soc.support.depression.manic (SSDM) |
| |
| Maintainers: Barry Campbell ([email protected])
|
| http://webveranda.com/barry/
|
| |
| Marco Anglesio ([email protected])
|
| |
| Archived at: http://www.moodswing.org/faq.html
|
| http://cspo.queensu.ca/~anglesio/faq
|
| |
---------------------------------
**********************************
DISCLAIMER AND COPYRIGHT NOTICE
(IMPORTANT - PLEASE READ)
The information presented in this FAQ is derived from published and unpublished
sources, and from the experiences and contributions of readers of the Usenet
newsgroups alt.support.depression.manic and soc.support.depression.manic.
Some of it is fact. Some of it is opinion. Some of it might well be
controversial in some circles. NONE of it should be relied upon as expert
opinion. This FAQ is provided as-is, without any express or implied warranties.
While we have made every effort to make it as accurate, responsible, and helpful
as possible, this FAQ is NOT the place to go if you're seeking expert medical,
psychological, or legal advice. The authors, maintainers, and contributors
responsible for the content of this FAQ assume no responsibility for errors or
omissions, or for damages resulting from the use of the information contained
herein.
If you have questions or concerns, contact a psychiatrist, psychologist,
licensed clinical social worker, pharmacist, nurse, other qualified and licensed
therapist or practitioner, or attorney, as the case may be.
This FAQ may contain short, excerpted material from texts or electronic media.
Where materials are directly quoted, complete references have been cited. The
Bipolar Disorders FAQ has been assembled for educational and informational
purposes only, and with no intent to profit; it is distributed free of charge.
No violation of U.S. copyright law is intended; all quotations are made under
the "Fair Use" doctrine. All authors of quoted material retain full
copyright protection.
The definitions of disorders used throughout this FAQ are those found in
"Diagnostic and Statistical Manual of Mental Disorders," Fourth
Edition (American Psychiatric Association, 1994). To obtain your own copy of
this and other American Psychiatric Association publications in book or digital
form, contact:
American Psychiatric Association
1400 K Street, NW; Suite 1101
Washington, DC 20005-2403
Phone: 1-800-368-5777 (M-F, 9 a.m.-5 p.m., EST)
Fax: 1-202-789-2648
http://www.appi.org/
This FAQ may be posted to any USENET newsgroup, on-line service, or BBS, or
pointed to or included on any WWW page, as long as it is posted in its entirety
and includes this copyright statement.
This FAQ may not be distributed for financial gain.
This FAQ may not be included in commercial collections or compilations
without express permission from the author(s).
ALL MATERIAL HEREIN NOT EXPRESSLY COVERED BY OTHER COPYRIGHT NOTICES IS
COPYRIGHT 1996, ALL RIGHTS RESERVED, UNDER UNITED STATES LAW AND THE BERNE
CONVENTION BY THE PRIMARY MAINTAINER, BARRY CAMPBELL ([email protected])
THE AUTHOR OF ALL UNATTRIBUTED MATERIAL FOR PURPOSES OF THE BERNE CONVENTION IS
BARRY CAMPBELL. THIS FAQ MAY NOT BE USED OR REPRODUCED IN CD-ROM COLLECTIONS,
PRINTED REPRODUCTIONS, OR ANY OTHER MEDIA FORMAT WITHOUT EXPRESS WRITTEN
PERMISSION.
***********************************
-----------------
TABLE OF CONTENTS
-----------------
1.0 Introduction and Acknowledgments to Contributors
2.0 Revision history and archive locations
3.0 Definitions (DSM-IV and "Extended")
3.1 What is Bipolar Disorder?
3.2 What is Depression?
3.3 What is Mania?
3.4 What is Hypomania?
3.5 What is the difference between euphoria and dysphoria?
3.6 What is a Mixed State?
3.7 What is Rapid Cycling?
3.8 What are delusions and hallucinations?
3.9 How do you tell unipolar depression and bipolar
disorder apart?
3.10 What is Cyclothymia?
3.11 What is Dysthymic Disorder?
3.12 What is Schizoaffective Disorder?
3.13 What is Seasonal Affective Disorder?
3.14 How do I distinguish between and among all of
these disorders?
4.0 How can I best take care of myself?
4.1 How can I assess my own mental status?
(Includes: The Goldberg Depression and Mania
Self-Rating Scales)
4.2 What treatment options are available?
4.3 How do I find a good health care provider?
4.4 What medications are commonly used in treatment?
4.5 What "alternative" therapies exist, and are they
any good?
4.6 How do I pay for all this? (Insurance-related
issues.)
4.7 What are my rights as a patient?
4.8 What are my rights as a person with Bipolar Affective
Disorder?
4.9 How can I tell my (friends, family, coworkers)? Should I?
4.10 Resource organizations
5.0 How do I help a friend or loved one?
5.1 What to do (and what not to do) when someone you care
about is diagnosed
5.2 What to do (and what not to do) if you suspect that
someone you care about needs help, but resists
seeking it for themselves.
6.0 Resources for education and support
6.1 Internet Resources
6.2 Books
6.3 Magazine and Journal Articles
7.0 Controversial Issues - making sense of them
7.1 To drug, or not to drug?
7.2 Should I participate in a study or other
research program?
7.3 How do I evaluate "alternative" therapies?
7.4 The Psychiatric Survivors' Movement
7.5 Critics of Psychiatry and Psychology
8.0 Is there life (and hope) after diagnosis?
8.1 Coping hints from readers and participants
8.2 Research trends and directions
------------------------------------------
1.0 Introduction and Acknowledgments to Contributors
-----------------------------------------------
The Bipolar Disorder FAQ is based largely on the FAQ from the Usenet newsgroup
alt.support.depression.manic. The alt.support.depression.manic FAQ was
originated and maintained until recently by PsyberNut/Bipolar Bear/Scott ([email protected]),
and this FAQ document contains much of his original work, essentially
unmodified; in particular, the "more complete list of symptoms sections are
his writing. We gratefully acknowledge our enormous debt to Scott, and wish him
the very best.
Many readers of alt.support.depression.manic (ASDM) and
soc.support.depression.manic (SSDM) have contributed directly and indirectly to
the development of this FAQ; many more have read it and offered comments and
criticism. So have readers and contributors to the PENDULUM mailing list.
A few contributors, in particular, must be singled out for their extraordinary
contributions. Thanks to:
Joy Ikelman ([email protected]), who
allowed us to ransack her "Media File," an excellent resource for
finding mood disorder information and references in print. Joy also completely
rewrote and updated the "definitions" section of the FAQ, based on
DSM-IV, and read early drafts, giving many helpful editorial criticisms along
the way.
Millie Niss ([email protected]),
for her well-researched contributions to the Drug Therapy section of the FAQ.
Dr. Ivan K. Goldberg, M.D ([email protected])
for his permission to reproduce
the Goldberg Depression and Mania Scales.
--------------------------------------
2.0 Revision history and archive locations
------------------------------------------
This is Version 1.1 of the Bipolar Disorder FAQ, released 25 September 1996.
This FAQ is posted periodically to the Usenet newsgroups
alt.support.depression.manic and soc.support.depression.manic.
The current version of the Bipolar Disorder FAQ may always be found on the World
Wide Web at:
http://www.moodswing.org/faq.html
(in the US) and
http://cspo.queensu.ca/~anglesio/faq
(in Canada)
We're always looking for folks who are willing to locate the FAQ for us in their
own countries. The Web IS international by definition, but it's always nicer to
hit a nearby server if you can. :-)
-----------------------------------
3.0 Definitions (DSM-IV and "Extended")
---------------------------------
There are many different mood disorders, and discussing them all thoroughly is
beyond the scope of this FAQ.
This FAQ focuses on the mood disorders which tend to be characterized by
"mood swings": alternating cycles of abnormally depressed and elevated
(manic) moods. You're up, you're down, you're up, you're down, you're up... and
some (or most) of the time, you're in the middle, trying to figure out what
happened.
While reading these definitions, it may be useful to think of Bipolar Disorder
and related disorders as existing along a continuum of "affects," or
moods.
------------------------------
3.1 What is Bipolar Disorder?
------------------------------
Bipolar Disorder is the medical name for Manic Depression; at various times, it
has also been known as Bipolar Affective Disorder and Manic-Depressive Illness.
It is a mood disorder that affects approximately 1% of the adult population of
the United States--and roughly the same percentage in other countries, as far as
we know. :-)
It's in the same family of illnesses (called "affective disorders") as
clinical depression. However, unlike clinical depression, which seems to affect
far more women than men, Bipolar Disorder seems to affect men and women in
approximately equal numbers.
It's characterized by mood swings. Though there is no known cure, most forms of
bipolar disorder are eminently treatable with medication and supportive
psychotherapy.
The textbook definition of Bipolar Disorder is: one or more Manic or Hypomanic
Episodes, accompanied by one or more Major Depressive Episodes. These episodes
typically happen in cycles.
All of these terms will be defined at greater length below...but in plain
English, a person who has Bipolar Disorder will be severely up some of the time,
severely down some of the time, and in the middle some or most of the time.
There are two main types of Bipolar Disorder:
-- Bipolar I is the "classic" form of Bipolar Disorder. It most often
involves widely spaced, long-lasting bouts of mania followed by long-lasting
bouts of depression and vice-versa. However, the essential definition is
depression plus mania, or "mixed states."
-- Bipolar II involves at least one Hypomanic Episode and one Major Depressive
Episode, but never either a full-blown Manic Episode or Cyclothymia. The
essential definition is depression plus hypomania.
Although the shifts from one state to another are usually gradual, they can be
quite sudden. The "rapid-cycling" form of the disorder involves four
or more complete mood cycles within a year's time, and some rapid-cyclers can
complete a mood cycle in a matter of days--or, more rarely, in hours.
It is also possible for someone who has Bipolar Disorder to be in a "mixed
state." This means that they're in a mood state which has some
characteristics of depression and some of mania or hypomania.
There are a few rare documented cases of mania without depression, but DSM-IV
does not currently include a category for just "mania". (This
diagnosis was present in DSM-III, but is unaccountably absent in DSM-IV!)
Using DSM-IV, a person exhibiting the symptoms of mania will almost always be
diagnosed as bipolar. The general feeling in the mental health community seems
to be that what or whom goes up, must eventually come down.
The DSM-IV and "extended" definitions of depression and mania are
presented in the sections that follow. It is very important to remember the
following:
-- These definitions are not a guide for self-diagnosis!
-- One does not need to exhibit *all* of the symptoms of depression to be
depressed, nor does one need to display *all* of the symptoms of mania to be
manic.
------------------------
3.2 What is Depression?
------------------------
***********************
Criteria for Major Depressive Episode (DSM-IV, p. 327)
A. Five (or more) of the following symptoms have been present during the same
2-week period and represent a change from previous functioning; at least one of
the symptoms is either (1) depressed mood or (2) loss of interest or pleasure.
Note: Do not include symptoms that are clearly due to a general medical
condition, or mood-incongruent delusions or hallucinations.
(1) depressed mood most of the day, nearly every day, as indicated by either
subjective report (e.g., feels sad or empty) or observation made by others (e.g.
appears tearful). Note: In children and adolescents, can be irritable mood.
(2) markedly diminished interest or pleasure in all, or almost all, activities
most of the day, nearly every day (as indicated by either subjective account or
observation made by others)
(3) significant weight loss when not dieting or weight gain (e.g., a change of
more than 5% of body weight in a month), or decrease or increase in appetite
nearly every day. Note: In children, consider failure to make expected
(4) insomnia or hypersomnia nearly every day
(5) psychomotor agitation or retardation nearly every day (observable by others,
not merely subjective feelings of restlessness or being slowed down)
(6) fatigue or loss of energy nearly every day
(7) feelings of worthlessness or excessive or inappropriate guilt (which may be
delusional) nearly every day (not merely self-reproach or guilt about being
sick)
(8) diminished ability to think or concentrate, or indecisiveness, nearly
every day (either by subjective account or as observed by others)
(9) recurrent thoughts of death (not just fear of dying), recurrent suicidal
ideation without a specific plan, or a suicide attempt or a specific plan for
committing suicide
B. The symptoms do not meet criteria for a Mixed Episode.
C. The symptoms cause clinically significant distress or impairment in social,
occupational, or other important areas of functioning.
D. The symptoms are not due to the direct physiological effects of a substance
(e.g., a drug of abuse, a medication) or a general medical condition (e.g.,
hypothyroidism).
E. The symptoms are not better accounted for by bereavement, i.e., after the
loss of a loved one, the symptoms persist for longer than 2 months or are
characterized by marked functional impairment, morbid preoccupation with
worthlessness, suicidal ideation, psychotic symptoms, or psychomotor
retardation.
*************************************
Well, the APA gives us a good starting point, but it all sounds sort of
clinical. Here's a more complete list of symptoms of depression that our readers
and participants have identified:
* Reduced interest in activities (like writing FAQs)
* Indecisiveness (maybe)
* Feeling sad, unhappy, or blue (pervasive attitude that life sucks)
* Irritability, dammit.
* Getting too much (hypersomnia) or too little (insomnia) sleep.
* Loss of, um, what were we talking about? Oh yeah, concentration.
* Increased or decreased appetite (my ex-mother-in-law's cooking
notwithstanding)
* Loss of self-esteem, such as my understanding that I suck.
* Decreased sexual desire.
* Problems with, whaddya call it? Oh yeah, memory.
* Despair and hopelessness
* Suicidal thoughts.
* Reduced pleasurable feelings.
* Guilt feelings, which are all my fault anyway.
* Crying uncontrollably and/or for no apparent reason.
* Feeling helpless, which I can't do anything about.
* Restlessness, especially when I can't hold still.
* Feeling disorganized (hell, look at my desk).
* Difficulty doing things (again, like finishing this FAQ)
* Lack of energy and feeling tired.
* Self-critical thoughts
* Moving and thinking slooooooowwwwwwwly.
* Feeling that one is in a stupor, or that one's head is in a fog.
* Speeeeeeeakiiinnnnng slooooooowwwwwwwly.
* Emotional and/or physical pain.
* Hypochondriacal worries; fears or illnesses which prove to be psychosomatic.
* Feeling dead or detached.
* Delusions of guilt or of financial poverty.
* Hallucinating.
-------------------
3.3 What is Mania?
-------------------
****************************************
Criteria for Manic Episode (DSM-IV, p. 332)
A. A distinct period of abnormally and persistently elevated, expansive, or
irritable mood, lasting at least 1 week (or any duration if hospitalization is
necessary).
B. During the period of mood disturbance, three (or more) of the following
symptoms have persisted (four if the mood is only irritable) and have been
present to a significant degree:
(1) inflated self-esteem or grandiosity
(2) decreased need for sleep (e.g., feels rested after only 3 hours of sleep)
(3) more talkative than usual or pressure to keep talking
(4) flight of ideas or subjective experience that thoughts are racing
(5) distractibility (i.e., attention too easily drawn to unimportant or
irrelevant external stimuli)
(6) increase in goal-directed activity (either socially, at work or school, or
sexually) or psychomotor agitation
(7) excessive involvement in pleasurable activities that have a high potential
for painful consequences (e.g., engaging in unrestrained buying sprees, sexual
indiscretions, or foolish business investments)
C. The symptoms do not meet criteria for a Mixed Episode.
D. The mood disturbance is sufficiently severe to cause marked impairment in
occupational functioning or in usual social activities or relationships with
others, or to necessitate hospitalization to prevent harm to self or others, or
there are psychotic features.
E. The symptoms are not due to the direct physiological effects of a substance
(e.g., a drug of abuse, a medication, or other treatments) or a general medical
condition (e.g., hyperthyroidism).
Note: Manic-like episodes that are clearly caused by somatic antidepressant
treatment (e.g., medication, electroconvulsive therapy, light therapy) should
not count toward a diagnosis of Bipolar I Disorder.
********************************************
Again, the APA gives us a good starting point for studying mania, but the
language is awfully clinical. Here's a plain-English version, with some
extensions:
* Decreased need for sleep.
* Restlessness.
* Feeling full of energy.
* Distractibility (what was that?)
* Increased talkativeness (or increased typeativeness)
* Creative thinking.
* Increase in activities.
* Feelings of elation.
* Laughing inappropriately
* Inappropriate humor.
* Speeded up thinking.
* Rapid, pressured speech, that you can teach, eating a peach, while on a beach.
* Impaired judgment
* Increased religious thinking or beliefs.
* Feelings of exhilaration.
* Racing thoughts, which can't be taught, and can't be bought, although they
ought, you might get caught.
* Irritability (dammit, there it is again!)
* Excitability.
* Inappropriate behaviors.
* Impulsive behaviors.
* Increased sexuality (also known as "platoon-of-Marines-on- shore-leave
syndrome")... or
* "clang associations" (the association of words based on
their sound, a possible reason so many poets are bipolar, also why we have pun
fun)
* _decreased_ interest in sex, or any other interpersonal relationships, due to
obsessive interest in some other subject or activity
* Inflated self-esteem (so prove I'm NOT the world's leading authority!)
* Financial extravagance.
* Grandiose thinking.
* Heightened perceptions.
* Bizarre hallucinations.
* Disorientation.
* Disjointed thinking.
* Incoherent speech.
* Paranoia, delusions of being persecuted.
* Violent behavior, hostility
* Severe insomnia
* Profound weight loss
* Exhaustion
-----------------------
3.4 What is Hypomania?
-----------------------
Hypomania means, literally, "mild mania."
It's sometimes difficult to draw a distinct line between "manic" and
"hypomanic," as "marked impairment" is a necessarily
subjective evaluation.
Also, one of the reasons that bipolar disorder often has a delayed diagnosis may
be that hypomanic episodes are often overlooked amid the "Sturm und Drang"
of adolescense and early adulthood.
The associated features of mania are present in Hypomanic Episodes, except that
delusions are never present and all other symptoms are *generally* less severe
than they would be in Manic Episodes.
****************************************
Criteria for Hypomanic Episode (DSM-IV, p. 338)
A. A distinct period of persistently elevated, expansive, or irritable mood,
lasting throughout at least 4 days, that is clearly different from the usual
nondepressed mood.
B. During the period of mood disturbance, three (or more) of the following
symptoms have persisted (four if the mood is only irritable) and have been
present to a significant degree:
(1) inflated self-esteem or grandiosity
(2) decreased need for sleep (e.g., feels rested after only 3 hours of sleep)
(3) more talkative than usual or pressure to keep talking
(4) flight of ideas or subjective experience that thoughts are racing
(5) distractibility (i.e., attention too easily drawn to unimportant or
irrelevant external stimuli)
(6) increase in goal-directed activity (either socially, at work or school, or
sexually) or psychomotor agitation
(7) excessive involvement in pleasurable activities that have a high potential
for painful consequences (e.g., engaging in unrestrained buying sprees, sexual
indiscretions, or foolish business investments)
C. The episode is associated with an unequivocal change in functioning that is
uncharacteristic of the person when not symptomatic.
D. The disturbance in mood and the change in functioning are observable by
others.
E. The episode is not severe enough to cause marked impairment in social or
occupational functioning, or to necessitate hospitalization, and there are no
psychotic features.
F. The symptoms are not due to the direct physiological effects of a substance
(e.g., a drug of abuse, a medication, or other treatment) or a general medical
condition (e.g., hyperthyroidism).
Note: Hypomanic-like episodes that are clearly caused by somatic
antidepressant treatment (e.g., medication, electroconvulsive therapy, light
therapy) should not count toward a diagnosis of Bipolar II Disorder.
****************************************
------------------------------------------------------------
3.5 What is the difference between euphoria and dysphoria?
------------------------------------------------------------
There are two basic types of mania (or hypomania): euphoric and dysphoric.
A person can experience both types when they have bipolar disorder.
In euphoria, a person is high, in love with the world, one with the world,
feeling boundless energy, talking a mile a minute, mind is racing, deluded with
grandiose thoughts, etc. This kind of mania is generally the kind described in
the popular literature.
Dysphoria is another type of mania. In dysphoria one is "high" but in
a different sense: agitated, destructive, full of rage, talking a mile a minute,
mind racing, deluded with grandiose thoughts, paranoid, full of anxiety,
panic-stricken. In addition, dysphoria can also come into the depressive side.
These are often referred to as "mixed episodes." Mixed episodes are
quite dangerous; suicidal ideation often accompanies this state.
What's the difference between agitated depression and dysphoric (hypo)mania?
Dr. Ivan Goldberg ([email protected])
explains: "While folks in an agitated depression show increased motor
activity, they never show increased sociability, increased creative thinking,
joking and punning that may be seen in someone experiencing a dysphoric (hypo)manic
state."
---------------------------
3.6 What is a Mixed State?
---------------------------
****************************************
Criteria for Mixed Episode (DSM-IV, p. 335)
A. The criteria are met both for a Manic Episode and for a Major Depressive
Episode (except for duration) nearly every day during at least a 1-week period.
B. The mood disturbance is sufficiently severe to cause marked impairment in
occupational functioning or in usual social activities or relationships with
others, or to necessitate hospitalization to prevent harm to self or others, or
there are psychotic features.
C. The symptoms are not due to the direct physiological effects of a substance
(e.g., a drug of abuse, a medication, or other treatment) or a general medical
condition (e.g., hyperthyroidism).
******************************************
Comment: This may be an instance in which the DSM-IV definition is a bit too
narrow. Many readers and participants in ASDM and SSDM report experiencing mixed
states with hypomanic, but not fully manic, features.
---------------------------
3.7 What is Rapid Cycling?
---------------------------
The "rapid-cycling" form of Bipolar Disorder involves four or more
complete mood cycles within a year's time, and some rapid-cyclers can complete a
mood cycle in a matter of days--or, more rarely, in hours. Studies show that
women are more likely than men to be diagnosed as rapid-cyclers.
--------------------------------------------
3.8 What are delusions and hallucinations?
--------------------------------------------
-- What are delusions?
Delusions are, in general, "false beliefs." The DSM-IV (p. 763)
defines a delusion as:
A false belief based on incorrect inference about external reality that is
firmly sustained despite what almost everyone else believes and despite what
constitutes incontrovertible and obvious proof or evidence to the contrary.
People who are in a manic or depressed episode may have delusions. Some of these
might include delusions of reference, where the individual feels like events,
objects, or other persons have a particular and unusual significance.
The individual may also have grandiose delusions or delusions of persecution
(such as paranoia).
It's important to note that delusions must be diagnosed in terms of cultural,
social, and religious norms. A belief that one is in direct> communication
with God, for example, might be either a delusion or an expression of certain
kinds of religious faith. :-)
-- Can people with bipolar disorder have hallucinations?
Most certainly. The DSM-IV (p. 766) defines a hallucination as:
A sensory perception that has the compelling sense of reality of a true
perception but that occurs without external stimulation of the relevant sensory
organ. Hallucinations should be distinguished from illusions, in which an actual
external stimulus is misperceived or misinterpreted.
Some people know that they are having hallucinations, and others do not. Most
people who have bipolar disorder realize that the hallucinations are not actual
perceptions of reality. However, this realization does not keep them from
occurring.
-- What kind of hallucinations are there?
Hallucinations may occur in any of the senses: auditory (for example, hearing
voices or music), gustatory (for example, unpleasant tastes), olfactory (for
example, unpleasant smells), somatic (for example, a feeling of
"electricity"), tactile (for example, a sensation of being touched, or
"skin crawling" sensations), visual (for example, flashes of light,
colors, images on the periphery).
----------------------------------------------------
3.9 How do you tell unipolar depression and bipolar
disorder apart?
----------------------------------------------------
If the person in question is known to have had even a single Manic or Hypomanic
Episode, then there is virtually no question; the diagnosis is a form of bipolar
disorder (or, in the case of hypomania, possibly cyclothymia.)
If the person in question is currently depressed, and his or her history is not
known, or is incomplete, the following guidelines by Dr. Ivan Goldberg may prove
to be useful:
The things that make me suspect bipolarity in a patient
diagnosed as unipolar are:
- oversleeping when depressed
- overeating when depressed
- a history of bipolarity in the family
- a patient who when depressed can still joke and laugh
- anyone with a history of frequent depressive episodes (rapidly cycling
unipolar disorder)
- success as a salesperson, politician, or actor (in school or real world)
- extreme rejection sensitivity
- a history of having ever been diagnosed as bipolar or given lithium (except to
potentiate antidepressants)
Of course, a unipolar patient can still sleep too much, unipolar depression or
bipolar disorder can surface earlier or later in life, and so on. These are
guidelines, not hard-and-fast rules.
--------------------------
3.10 What is Cyclothymia?
--------------------------
********************************************
Diagnostic Criteria for Cyclothymic Disorder (DSM-IV, p. 365)
A. For at least 2 years, the presence of numerous periods with hypomanic
symptoms and numerous periods with depressive symptoms that do not meet criteria
for a Major Depressive Episode. Note: In children and adolescents, the duration
must be at least 1 year.
B. During the above 2-year period (1 year in children and adolescents), the
person has not been without the symptoms in Criterion A for more than 2 months
at a time.
C. No Major Depressive Episode, Manic Episode, or Mixed Episode has been present
during the first 2 years of the disturbance.
Note: After the initial 2 years (1 year in children and adolescents) of
Cyclothymic Disorder, there may be superimposed Manic or Mixed Episodes (in
which case both Bipolar I Disorder and Cyclothymic Disorder may be diagnosed) or
Major Depressive Episodes (in which case both Bipolar II Disorder and
Cyclothymic Disorder may be diagnosed).
D. The symptoms in Criterion A are not better accounted for by Schizoaffective
Disorder and are not superimposed on Schizophrenia, Schizophreniform Disorder,
Delusional Disorder, or Psychotic Disorder Not Otherwise Specified.
E. The symptoms are not due to the direct physiological effects of a substance
(e.g., a drug of abuse, a medication, or other treatment) or a general medical
condition (e.g., hyperthyroidism).
F. The symptoms cause clinically significant distress or impairment in social,
occupational, or other important areas of functioning.
****************************************
*** 3.11 What is Dysthymic Disorder?
***********************************************
* Section under construction - BC *
***********************************************
*** 3.12 What is Schizoaffective Disorder?
***********************************************
* Section under construction - BC *
***********************************************
*** 3.13 What is Seasonal Affective Disorder?
***********************************************
* Section under construction - BC *
***********************************************
*** 3.14 How do I distinguish between and among all of
these disorders?
***********************************************
* Section under construction - BC *
***********************************************
---------------------------------------
4.0 How can I best take care of myself?
-----------------------------------------
If you've been diagnosed with a form of bipolar disorder, you'll probably find
no shortage of people (doctors, family members, members of support groups)
offering advice, whether you ask for it or not. :-)
And now here we are, getting in line behind all of those people.
The advice we're presenting here is GENERAL. Everyone with this illness is a
unique individual, and individuals respond in unique and sometimes unexpected
ways; use your best judgment and common sense about whether this advice is right
for you.
That being said:
The most important general guideline for self-care is to establish a sound
therapeutic relationship with one or more doctors: a psychiatrist or
psychopharmacologist for drug therapy, and, if you prefer not to use this person
for more traditional forms of therapy but want a professional to talk to, a
psychologist, licensed clinical social worker, or similar licensed counselor.
Bipolar Disorder is a lifelong, chronic medical condition. It cannot be cured,
but it can in almost all cases be managed to at least some extent.
Some more general guidelines, which mostly fall into the category of common
sense but bear repeating (and please note that these are GENERAL statements, and
that everyone is an individual--your mileage may vary!):
-- Take responsibility for your own well-being.
You can have the finest medical team in the world working on "your
case," but if you don't first accept that you *have* a chronic medical
condition and take responsibility for doing what it takes to manage it, you're
wasting time and money. Obviously, if you're in the throes of an incapacitating
depression or mania, this can be hard if not impossible to do, and someone else
may (temporarily) need to make these sorts of decisions for you; also, people
respond in different ways to various kinds of medication and therapy.
But in general, remember: you're the boss, you're the one calling the shots and
deciding which resources to utilize (or not.)
The key thing to remember is that there's a LOT of help out there if you want to
get things under control--but you have to decide to seek it out, and you have to
decide that you will commit to a healthy course of action.
-- Work with your doctors, not against them--and insist that they work with you.
It's vitally important that you be able to communicate with the doctors and
health-care professionals that you choose to use as resources.
If you're not comfortable talking with someone, or if they don't listen to you,
look for another therapeutic relationship. Period. It's *vital* that you and
your doctor(s) listen to and respect each other.
-- Develop a survival mentality.
A few of us who start medical treatment for Bipolar Disorder are pretty much a
symptomatic afterwards--in other words, we never, ever have another flare-up. A
few of us don't seem to respond satisfactorily to ANYTHING we try. Almost all of
us fall somewhere in-between-- we get some measure of control over our bipolar
disorder, but we still experiences ups and downs, and still have tough times
that must be endured.
A "survival mentality" means, first of all, deciding that there's life
after diagnosis. Getting the news that you have a medical condition that you'll
be dealing with (in all probability) for the rest of your life can be a major
shock to the system! Recognize that there are literally *millions* of people
around the world dealing with this disorder; you're not alone, and there are
many resources available to help you cope.
Second of all, it means that when times DO get tough, you do what it takes to
get through it. In extreme cases, this may involve voluntarily checking yourself
in to a hospital under a doctor's care.
This isn't an experience that most people would seek out for themselves, but
when things get badly out of hand, it can literally be a lifesaver.
Remember: your first goal is to *survive*--to take care of yourself. Your
secondary goal might be to contribute as much as you can to the lives of your
friends, family, loved ones, co-workers, etc... or it might be something else
entirely.
But if you don't take care of the first goal, the other ones are utterly
meaningless.
-- Become aware of your mood states.
At first glance, this seems like a really stupid thing to say. If you're
depressed, you know damn well that you feel awful... though you may not identify
"depression" as the cause at the time. Hypomania and mania can be
harder to recognize when it's happening to you, but as you gain more experience
in dealing with this disorder, you'll become more sensitized to your moods and
their cycles.
If you become more aware and conscious of your mood states, however, you may
find that you can spot trends earlier and head off potential problems.
Many bipolar folks chart their moods on a calendar or in a diary; this helps
them understand their cycles better, and can also provide important clues about
possible environmental stimuli that might either be causing problems or giving
relief. For instance, if you note that your mood is generally better for a day
or two after you work out vigorously, you might want to consider making exercise
a regular part of your coping strategy... or if you notice that you feel
especially depressed after a certain activity or eating/drinking certain foods
or beverages, you might consider limiting that sort of thing.
One simple way to do this is to choose some kind of arbitrary numeric scale...
let's say that "1" is severe depression, "5" is
"normal," whatever that means, and "10" is severe mania.
Something as simple as jotting down a number reflecting your own assessment of
your mood state *at roughly the same time every day* can give you very important
information about the length and quality of your mood cycles.
Also, many folks establish "contracts" with trusted friends or family
members--they work out ways in which the trusted outside observer can
communicate to them, in a friendly, loving, and non-threatening way, that they
think that you are becoming depressed or (hypo)manic.
Finally, remember that even though you have a mood disorder, you're almost
certainly still prone to everyday, ordinary moodiness! If you wake up in the
morning feeling bad, it might be a precursor to a serious depression, or you
might just be having a bad hair day. If you wake up feeling on top of the world,
you might be getting (hypo)manic, or you might just be having, um, a good hair
day. ;-) Watch the overall *trends* over time, and try not to watch yourself
under a microscope and obsess over the tiny details. ;-)
-- Structure your life to the extent possible.
Without becoming fanatical about it, many bipolar folks find that sticking to as
regular a schedule as possible of eating, sleeping, working, and so forth is
helpful in stabilizing their moods. Sleep deprivation can DEFINITELY precipitate
(hypo)mania, for one thing.
-- Educate yourself about this illness.
Ignorance and fear are the Big Enemies. Educate yourself about your condition.
At a minimum, know what your diagnosis is and what the symptoms are, and know
what meds you're taking and what the side-effects are likely to be.
-- Exercise regularly and vigorously, if you're physically able.
Many readers and participants in ASDM and SSDM say that regular exercise really
helps them stay on an even keel.
-- Avoid artificial stimulants and depressants.
Some bipolar folks tolerate caffeine (stimulant) and alcohol (depressant) just
fine in moderation--though both substances can potentially interact in nasty
ways with commonly used medications, alcohol especially.
Some folks find that they need to avoid these substances entirely.
If you ARE going to drink espresso and Scotch (hopefully not at the same time!)
make sure that your doctor(s) know(s) about it, and that you're not setting
yourself up for a nasty drug interaction...
...and remember that moderation, as in so many things, is key, and abstinence
might very well be the best choice.
-- Enlist the support of family and friends.
The importance of having a good support structure cannot be overemphasized.
Sadly, sometimes friends and family members can't handle the idea of a loved one
with a "mental illness." This is usually ignorance and fear talking,
and often these people can be educated and brought around.
If there are people that you can really trust and talk to, let them know about
what's going on with you.
-- Join a support group.
Check the "Resources" section of the FAQ for information on how to
find a "real-world" support group near you... but don't neglect the
many online support groups that are available. :-)
-------------------------------------------
4.1 How can I assess my own mental status?
-------------------------------------------
Q: How can I tell if I am depressed or just in a bad mood?
A: Frequently, it is more obvious to those around us that we are depressed than
it is to ourselves. Distorted judgment is part of having a mood disorder, so it
is not uncommon for our family and friends to recognize signs before we do.
This section and the next involve the Goldberg Mood Scales, by Dr. Ivan K.
Goldberg, M.D. They are reprinted with his permission.
The scales ARE NOT designed to diagnose any psychiatric disorder, nor are they
intended to replace evaluation by a qualified psychiatrist. They are only
intended to measure the severity of depressive and/or manic symptoms, and thus
to help the reader decide whether to seek a psychiatric evaluation.
The Goldberg Depression Scale, below, is a self-administered questionnaire
designed to measure the severity of depressive thinking and behavior.
Goldberg Depression Scale
-------------------------
Copyright (c) 1993 Ivan Goldberg
Name______________________________________ Date__________________________
The items below refer to how you have felt and behaved DURING THE PAST WEEK. For
each item, indicate the extent to which it is true, by circling one of the
numbers that follows it. Using the following scale:
0 = Not at all 1 = Just a little 2 = Somewhat
3 = Moderately 4 = Quite a lot 5 = Very much
=========================================
1. I do things slowly. 0 1 2 3 4 5
2. My future seems hopeless. 0 1 2 3 4 5
3. It is hard for me to concentrate on reading. 0 1 2 3 4 5
4. The pleasure and joy has gone out of my life. 0 1 2 3 4 5
5. I have difficulty making decisions. 0 1 2 3 4 5
6. I have lost interest in aspects of life that used to be important to me. 0 1
2 3 4 5
7. I feel sad, blue, and unhappy. 0 1 2 3 4 5
8. I am agitated and keep moving around. 0 1 2 3 4 5
9. I feel fatigued. 0 1 2 3 4 5
10. It takes great effort for me to do simple things. 0 1 2 3 4 5
11. I feel that I am a guilty person who deserves to be punished. 0 1 2 3 4 5
12. I feel like a failure. 0 1 2 3 4 5
13. I feel lifeless - - - more dead than alive. 0 1 2 3 4 5
14. My sleep has been disturbed---too little, too much, or broken sleep. 0 1 2 3
4 5
15. I spend time thinking about HOW I might kill myself. ~~~ 0 1 2 3 4 5
16. I feel trapped or caught. 0 1 2 3 4 5
17. I feel depressed even when good things happen to me. 0 1 2 3 4 5
18. Without trying to diet, I have lost, or gained, weight. 0 1 2 3 4 5
A score of 15 or higher on the depression scale indicates the possible need for
a psychiatric evaluation.
Copyright (c) 1993 Ivan Goldberg
---------------------------------
Q: How can I tell if I am manic or just unusually cheerful?
A: Much like depression, it is frequently more obvious to those around us that
we are becoming manic or hypomanic than it is to us. Impaired judgment is every
bit as much a part of mania as it is a part of depression, and it is not
uncommon for someone on a manic upswing to think they simply feel so good
because the damn depression is finally over. Family and friends can usually tell
the difference quite easily, although convincing the manic subject of his/her
mania can be quite a different matter.
This section, like the last, involves one of the Goldberg Mood Scales by Dr.
Ivan K. Goldberg, M.D. Again, the scales ARE NOT designed to diagnose any
psychiatric disorder, nor are they intended to replace evaluation by a qualified
psychiatrist. They are only intended to measure the severity of depressive
and/or manic symptoms, and thus to help the reader decide whether to seek a
psychiatric evaluation.
The Goldberg Mania Scale, below, is a self-administered questionnaire designed
to measure the severity of manic thinking and behavior.
Goldberg Mania Scale
--------------------
Copyright (c) 1993 Ivan Goldberg
Name_________________________________________ Date_______________________
The items below refer to how you have felt and behaved DURING THE PAST WEEK. For
each item, indicate the extent to which it is true, by circling one of the
numbers that follows it. Using the following scale:
0 = Not at all 1 = Just a little 2 = Somewhat
3 = Moderately 4 = Quite a lot 5 = Very much
=========================================
1. My mind has never been sharper. 0 1 2 3 4 5
2. I need less sleep than usual. 0 1 2 3 4 5
3. I have so many plans and new ideas that it is
hard for me to work. 0 1 2 3 4 5
4. I feel a pressure to talk and talk. 0 1 2 3 4 5
5. I have been particularly happy. 0 1 2 3 4 5
6. I have been more active than usual. 0 1 2 3 4 5
7. I talk so fast that people have a hard time keeping up with me. 0 1 2 3 4 5
8. I have more new ideas than I can handle. 0 1 2 3 4 5
9. I have been irritable. 0 1 2 3 4 5
10. It's easy for me to think of jokes and funny stories. 0 1 2 3 4 5
11. I have been feeling like "the life of the party." 0 1 2 3 4 5
12. I have been full of energy. 0 1 2 3 4 5
13. I have been thinking about sex. 0 1 2 3 4 5
14. I have been feeling particularly playful. 0 1 2 3 4 5
15. I have special plans for the world. 0 1 2 3 4 5
16. I have been spending too much money. 0 1 2 3 4 5
17. My attention keeps jumping from one idea to another. 0 1 2 3 4 5
18. I find it hard to slow down and stay in one place. 0 1 2 3 4 5
A score of 20 or higher on the mania scale suggests the possible need for an
evaluation by a qualified psychiatrist.
Copyright (c) 1993 Ivan Goldberg
---------------------------------
*** 4.2 What treatment options are available?
***********************************************
* Section under construction - BC *
*****************************************
*** 4.3 How do I find a good health care provider?
****************************************
* Section under construction - BC *
****************************************
---------------------------------------
4.4 What medications are commonly used in treatment?
-----------------------------------------
First, we'll lead off this section with an excellent introduction, written by
Joy Ikelman ([email protected]) , with
additions by Dr. Ivan Goldberg ([email protected]):
**********************************
Ten Little Things I Have Learned About Drug Therapy
(1) We believe what we want to believe (about this topic or any topic).
(2) We bipolars know how it feels to be on these drugs--despite what the docs
might say about how we "should" feel. Side effects are often more
complex and difficult than the drug companies/PDR say they are.
(3) We bipolars know that the cycles sometimes break through despite the best of
drug therapies--even though docs say we "should" be completely stable
on this stuff. A lot of the time we just keep quiet when these breakthrough
episodes happen or else the doc might raise our dose or hospitalize us. (See
Item 2.)
(4) We all hope to be the lucky ones in this crap shoot of drug therapy.
Initially, we are optimistic. Maybe if we get just the right combination of
drugs, just the right dosage, just the right psychopharmacologist, just the
right attitude....something, something might just work....
(5) There are some combinations which work better than others. These should be
tried first.
(6) However, there is no magic formula which works perfectly for everyone. It's
mostly hit and miss. So, if something works, stick with it.
(7) And, after we find the right combo it may work wonderfully well for 30+
years, or sometimes after a few years it doesn't work any more and the search
resumes for another combo that will work. We hope that by then something new and
very effective will be available.
(8) Manic depression does not have a "cure." The mood stabilizing
drugs are a way to cope with the illness. Take the accustomed drugs away and for
most folks, the cycles come back full force, sometimes worse.
(9) We all have different ideas of what we will settle for, as a result of drug
therapy. Some will settle for nothing less than the elimination of all cycling.
Some will settle for a little cycling and learn to cope with it in different
ways. Some will settle for quite a bit of cycling, as long as the manias aren't
too high or the depressions too low.
(10) Drug therapy is a choice. The most important thing is stay alive and
possibly make some contribution to the few people you interact with in your
lifetime. Whatever it takes to stay alive (drugs or not), do it.
******************************************
Now, on to a more general discussion of the meds. Thanks to Millie Niss
([email protected])
for researching and writing the following information:
There are three types of medications commonly used in treating Bipolar Disorder:
-- mood stabilizers
-- antidepressants, and
-- antipsychotics.
Other medications may be given to help you sleep or to treat anxiety and/or
panic attacks if you have them.
Because many people need a combination of two or three drugs to get stable, it
can take quite some time to find the right medications (and the right dosages of
each.) This is usually on the order of magnitude of weeks or months... but it's
been known to take *years* to find the exact combination and dosages that work.
If the first medication you get does not help, it *does not mean* you are
untreatable! Work with your doctor and make sure that he or she
is listening to you, and don't give up!
Some drugs can potentially cause relatively severe side-effects. Don't hesitate
to complain to your doctor and insist on lowering dosages or trying a new drug
if the side-effects are intolerable.
In particular, mood stabilizers and antipsychotics in high doses can make you
very tired and slowed down and "zombie-like."
Don't accept this as a "necessary" condition of getting well!
Sometimes, as with any drug, you will have to choose between total elimination
of symptoms and a tolerable level of side-effects; the key thing is to
*communicate* with your doctor about what you're experiencing, and make sure
that you know all your options.
(That being said, many people do quite well on lithium, or lithium plus an
antidepressant.)
We're listing potential side-effects below, as we discuss each drug. Our
objective here is not to frighten, but to inform and share experiences. Everyone
is different; some people will take these meds and experience no side effects;
some people will experience side effects that aren't listed here.
*Communicate* with your doctor, your pharmacist, and the other members of your
health-care team about what's going on with you and your meds.
Mood Stabilizers
----------------
Mood stabilizers are the primary treatment for most people. They are supposed to
level your moods, so that you neither get too low (depressed) or too high
(manic). In practice, they work much better at treating mania than depression,
and may have a mood-dampening effect, so that you get more depressed on a mood
stabilizer than you were before. For this reason, some people are now calling
these drugs
"antimanics."
Mood stabilizers take a week or two to get a therapeutic blood level and then it
may take a few more weeks to get the full effect of the drug. In acute
situations, another drug may be needed while you wait for the mood stabilizer to
take effect.
The most common mood stabilizers are:
Lithium (Eskalith, Lithane, Lithobid, Lithonate, Lithotabs)
--------------------------------------
This is the oldest and most common mood stabilizer and is usually the first drug
you will get when diagnosed with bipolar disorder. It tends to be fairly easy to
tolerate for most people, and stabilizes 50-60% of patients all by itself.
Common side-effects are: lethargy, diarrhea, nausea, frequent urination, tremor,
weight gain.
Symptoms of lithium toxicity are: intense versions of the above, twitching,
shaking, dizziness, loss of balance, thirstiness, blurred vision, confusion,
convulsions.
Note: if you cannot tolerate the side-effects of regular lithium, you may want
to try a time-released form of it, such as Lithobid.
It is very important to get frequent blood tests when first starting lithium
because the therapeutic blood level is quite close to the toxic level. After
dosage is established, blood tests can be every six months. It is also a good
idea to check liver and thyroid function because these can be damaged by
long-term lithium use.
The other mood stabilizers are anticonvulsants, used primarily to treat epilepsy
but also effective in the treatment of Bipolar Disorder:
Valproic Acid (Depakote, Depakene, Epival)
------------------------------------------
Side effects are similar to lithium, long term toxicity may be less severe. Some
people find that Depakote gives them depression, or intensifies existent
depression. It can also cause sexual dysfunctions (anorgasmia, premature
ejaculation, retrograde ejaculation, reduction of libido) in both men and women.
Carbamazepine (Tegretol)
------------------------
Tegretol is another anti-convulsant.
Side effects of Tegretol are generally more severe than for lithium or Depakote,
but some patients who cannot tolerate lithium do fine on Tegretol. Tegretol is
also especially effective for rapid cyclers.
Side effects: nausea, dizziness, confusion, cognitive slowing, loss of
coordination, tremor, sores in mouth & gums, *reduction in effectiveness of
birth control pills.*
Other anticonvulsants are now being used as mood stabilizers experimentally.
Also, Klonopin (an anti-anxiety drug which is also an anti-convulsant) may be
used as a mood stabilizer.
Some people with mood swings who don't actually get fully manic may get
stabilized on an antidepressant alone. (See WARNING below, however.)
Antidepressants
---------------
------------------------------------------
WARNING: USING ANTIDEPRESSANTS ALONE TO TREAT BIPOLAR DISORDER CAN INVOLVE
SUBSTANTIAL RISK OF INDUCING HYPOMANIA OR MANIA.
-------------------------------------------
Antidepressants (ADs) are part of most people's treatment if their disease
includes severe depression. However, they must be used cautiously by bipolars.
Although ADs normally do not cause folks to get high even when taken in larger
doses than needed, for a significant number of bipolars ADs can cause mania or
hypomania and/or may trigger rapid cycling. This is most frequently reported
with the older tricyclic ADs (like nortriptylene) and apparently least likely to
occur with the AD Wellbutrin. Usually these undesirable effects can be avoided
by using an "AD + mood stabilizer" combo, but even this does not
eliminate the risk entirely. Any bipolar starting on an antidepressant should
monitor their moods carefully and stay in close contact with their physician
until it is clear that these effects do not appear or appear only to a degree
that is acceptable.
Antidepressants can take a really long time to work--six weeks or more-- and
then it may take a while to find the AD which works for you, so the hardest part
about ADs is often the waiting!
Antidepressants come in several flavors:
SSRIs
-----
"SSRI" means Selective Serotonin Reuptake Inhibitor.
These are the newest class of ADs and tend to be the first drugs used these
days, although there is no evidence that they work better than tricyclics or
MAOIs.
The SSRIs are: Prozac, Paxil, Zoloft, Luvox, Effexor (partly)
Side effects are: dry mouth, tremor, nausea, insomnia, drowsiness, anxiety,
hypomania, sexual dysfunction.
The SSRIs can cause rather extreme side-effects if they make you manic (or
induce rapid cycling), but they are not very toxic so they are safest to use
with a suicidal patient.
Tricyclics
----------
Common tricyclics include: Norpramin (desipramine), amitriptylene, nortriptylene,
Sinequan, Elavil, Anafranil, Doxepin.
The side-effects are the same as for SSRIs--supposedly more severe, but your
mileage may vary.
The tricyclics are generally more sedating than the SSRIs, and are often used as
sleeping pills. They also tend to cause weight gain.
Tricyclics are quite toxic in overdose, and there is a danger of accidental
overdose, especially when used as a sleeping pill "as needed."
MAOIs
-----
"MAOI" = "Monoamine Oxidase Inhibitor."
Common MAOIs are: Nardil (phenelezine) and Parnate.
Side effects: Same as above, weight gain.
MAOIs are safer for your heart than tricyclics, so they are safer to use with
elderly patients or patients with heart problems.
MAOIs may be effective in patients who don't respond to SSRIs or tricyclics.
They are thought to be especially helpful for people who are very tired and numb
when depressed and who can be cheered up/made more active by outside
stimulation.
They may also be more effective with "atypical depression," (more
depressed late in the day rather than early, weight gain rather than weight
loss, too much sleep rather than too little, etc.).
The main problem with MAOIs is that they interact dangerously with foods
containing tyramine (an amino acid). The combination can lead to acute
hypertension (high blood pressure). This can be very dangerous and cause stroke,
heart attack, or death, though such a severe reaction is rare. Symptoms of a
hypertensive attack are severe headache in the back of the head, nausea,
weakness, sudden collapse.
A partial list of foods to be avoided is: cheese, yogurt, soy sauce, avocado,
ripe bananas or figs, smoked salmon, cured ham, salami, pickled herring, broad
beans.
Caffeine and chocolate should be used with caution.
There are also interactions with many drugs, and you should not take any
medication (including over-the-counter drugs) without asking your doctor or
pharmacist. Drugs to avoid include: antihistamines, decongestants, any cold
remedy, codeine, amphetamines, Demerol and other narcotic pain relievers, some
forms of general anesthesia.
Because of these interactions with food and drugs, you should get a Medic Alert
bracelet if you are on an MAOI.
Other ADs
---------
Some other antidepressants include:
Wellbutrin
----------
Thought not to cause mania as much, but can make people quite hyper and nervous.
Side effects are as for the others, with the addition of a significant risk of
seizures in extreme doses.
Serzone
-------
Desyrel (trazodone): used mainly as a sleeping pill as it is not a very
effective AD.
Antipsychotics
--------------
Also called "neuroleptics" or "major tranquilizers," these
drugs have several uses in bipolar patients. One main use is to calm people down
in acute mania, while waiting for a mood stabilizer to work. These drugs are
also used (in low doses) as sleeping pills or to combat anxiety, and in higher
doses for psychotic symptoms such as hallucinations, delusions, etc. They are
also used in combination with a mood stabilizer as part of the maintenance
medications used to prevent further episodes.
The major antipsychotics are: Thorazine (chlorpromazine) , Mellaril (thioridazine),
Stelazine, Haldol (haloperidol), Risperdal (risperidone), Clozaril (clopazine),
Trilafon (perphenezine)
Side effects are similar for all of these although some drugs (Mellaril,
Thorazine) are relatively mild in their side-effects while others (Haldol) have
severe side-effects for many people.
The main side effects are: sleepiness, slowed speech and thinking, difficulty
walking or with balance, restlessness, twitching, involuntary movements,
confusion, stiffness
If the twitching/involuntary movement/stiffness becomes severe, this can
sometimes be relieved with an antiparkinsonian drug such as Cogentin.
The major risk with these drugs is a condition called tardive dyskinesia--where
the twitching or stiffness remains after the drug is discontinued. It is quite
rare at low doses and when the drugs are not used for very long.
Other medications
-----------------
1) benzodiazepines or "minor tranquilizers"
These drugs are used to treat anxiety and panic attacks, or as sleeping pills.
Common benzos are: Valium (diazepam), Ativan (lorazepam), ProSom (estazolam),
Restoril (temazepam), Klonopin (clonazepam).
Side-effects are drowsiness and nausea (rare)
The main problem with these drugs is that they can be habit-forming, and people
develop rapid tolerance (meaning they need higher and higher doses to get the
same effect). It can also be difficult to get off a benzodiazepine because of
withdrawal effects. Some doctors won't use these drugs for this reason, but most
people will have no problem if the use is short-term.
Benzos are much more gentle as sleeping pills than the major tranquilizers.
*** 4.5 What "alternative" therapies exist, and are they any good?
***********************************************
* Section under construction - BC *
***********************************************
*** 4.6 How do I pay for all this? (Insurance-related issues.)
***********************************************
* Section under construction - BC *
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*** 4.7 What are my rights as a patient?
***********************************************
* Section under construction - BC *
***********************************************
*** 4.8 What are my rights as a person with Bipolar Affective Disorder?
***********************************************
* Section under construction - BC *
***********************************************
*** 4.9 How can I tell my (friends, family, coworkers)? Should I?
***********************************************
* Section under construction - BC *
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---------------------------
4.10 Resource Organizations
---------------------------
The Depressive and Related Affective Disorders Association; Johns Hopkins
Hospital, 600 North Wolfe Street, Baltimore, MD, 21205. DRADA's email address
is: [email protected]
. Their WWW site:
http://infonet.welch.jhu.edu/departments/drada/default
DRADA's fax number is 410-614-3241.
National Alliance for the Mentally Ill: 200 N. Glebe Road; Suite 1015;
Arlington, VA 2203-3754. Phone: 703-524-7600.
National Depressive and Manic Depressive Association: 730 N. Franklin,
Chicago, IL 60610. Phone: 1-800-82N-DMDA.
National Institute of Mental Health: has free brochures and information.
Call 1-800-647-2642. Their Panic Disorder Education Program is at: Room 7C-02,
5600 Fishers Lane, Rockville, MD 20857.
------------------------------------------------
5.0 How do I help a friend or loved one?
--------------------------------------------
Bipolar Disorder doesn't just affect the person who's diagnosed with it,
unfortunately. In this section, we talk about some things that friends, family
members, and loved ones can do to cope and help when someone they care about is
diagnosed.
-------------------------------------------
5.1 What to do (and what not to do) when someone you care about is diagnosed
--------------------------------------------
Twelve things to do if your loved one has depression, manic-depression, or some
other mood disorder:
1. Don't regard this as a family disgrace or a subject of shame. Mood disorders
are biochemical in nature, just like diabetes, and are just as treatable.
2. Don't nag, preach or lecture to the person. Chances are he/she has already
told him or herself everything you can tell them. He/she will take just so much
and shut out the rest. You may only increase their feeling of isolation or force
one to make promises that cannot possibly be kept. (I promise I'll feel better
tomorrow honey; I'll do it then, okay?)
3. Guard against the "holier-than-thou" or martyr-like attitude. It is
possible to create this impression without saying a word. A person suffering
from a mood disorder has an emotional sensitivity such that he/she judges other
people's attitudes toward him/her more by actions, even small ones, than by
spoken words.
4. Don't use the "if you loved me" appeal. Since persons with mood
disorders are not in control of their affliction, this approach only increases
guilt. It is like saying, "If you loved me, you would not have
diabetes."
5. Avoid any threats unless you think them through carefully and definitely
intend to carry them out. There may be times, of course, when a specific action
is necessary to protect children. Idle threats only make the person feel you
don't mean what you say.
6. If the person uses drugs and/or alcohol, don't take it away from them or try
to hide it. Usually this only pushes the person into a state of desperation
and/or depression. In the end he/she will simply find news ways of getting more
drugs or alcohol if he/she wants them badly enough. This is not the time or
place for a power struggle.
7. On the other hand, if excessive use of drugs and/or alcohol is really a
problem, don't let the person persuade you to use drugs or drink with him/her on
the grounds that it will make him/her use less. It rarely does. Besides, when
you condone the use of drugs or alcohol, it is likely to cause the person to put
off seeking necessary help.
8. Don't be jealous of the method of recovery the person chooses. The tendency
is to think that love of home and family is enough incentive to get well, and
that outside therapy should not be needed.
Frequently the motivation of regaining self respect is more compelling for the
person than resumption of family responsibilities. You may feel left out when
the person turns to other people for mutual support. You wouldn't be jealous of
their doctor for treating them, would you?
9. Don't expect an immediate 100 percent recovery. In any illness, there is a
period of convalescence. There may be relapses and times of tension and
resentment.
10. Don't try to protect the person from situations which you believe they might
find stressful or depressing. One of the quickest ways to push someone with a
mood disorder away from you is to make them feel like you want them to be
dependent on you.
Each person must learn for themselves what works best for them, especially in
social situations. If, for example, you try to "shush" people who ask
questions about the disorder, treatment,
medications, etc., you will most likely stir up old feelings of resentment and
inadequacy. Let the person decide for THEMSELVES whether to answer questions, or
to gracefully say "I'd prefer to discuss something else, and I really hope
that doesn't offend you".
11. Don't do for the person that which he/she can do for him/herself. You cannot
take the medicine for him/her; you cannot feel his/her feelings for him/her, and
you can't solve his/her problems for him/her; so don't try. Don't remove
problems before the person can face them, solve them or suffer the consequences.
12. Do offer love, support, and understanding in the recovery, regardless of the
method chosen. For example, some people choose to take meds; some choose not to.
Each has advantages and disadvantages (more side-effects versus greater
possibility of relapse, for example). Expressing disapproval of the method
chosen will only deepen the person's feeling that anything they do will be
wrong.
----------------------------------------------
5.2 What to do (and what not to do) if you suspect that someone you care about
needs help, but resists seeking it for themselves.
-----------------------------------------------
First, re-read section 5.1. Now, re-read it again. :-)
Okay. Now that you're back with us...
One of the most frightening and frustrating aspects of this illness, for
friends, family, and loved ones, is that many bipolar people resist seeking
help.
When you're depressed, you may not believe that help is possible... so why
bother?
When you're hypomanic or manic, you may well be irritated or offended when
someone suggests that you need help. If the mania is euphoric in nature, then
you don't WANT help... at least initially, it feels GREAT (though it's hell for
the people around you.)
Some bipolar people refuse to seek help for their entire lives. Others resist at
first, but ultimately acknowledge that they cannot control this illness all by
themselves.
This happens for a variety of reasons--fear, mistrust, denial--but here's what
it boils down to:
If someone doesn't want treatment, there are only very limited circumstances in
which it can be forced upon them.
In most places in the civilized world, unless the person with bipolar disorder
presents an imminent danger to his or her own health and safety, or to the
lives of others, THEY CANNOT BE FORCED INTO TREATMENT.
This is bitter medicine to take when you love someone and are watching them
seemingly self-destruct. The hard truth is, you can't live someone else's life
for them, as much as you might want to... and as much as you might think that
what you're doing, you're doing for their own good.
Another, related issue--what if the person that you're concerned about is
seeking a form of help that you fear won't be useful?
The vast majority of bipolar people who decide to pursue treatment utilize
traditional, allopathic medicine and/or conventional psychotherapy as treatment
resources; the outcomes in these cases are generally much more positive than if
the illness is left untreated.
However, this is by no means a universal truth.
Some bipolar people pursue alternative therapies and treatments--either after
medical treatment has seemingly failed, or due to a general mistrust of doctors
and drugs. These therapies may range from outright quackery (Reichian "orgone
boxes" and similar silliness) to therapies for which some interesting and
promising anecdotal evidence exists (such as orthomolecular/nutritional therapy)
but no studies conclusively proving efficacy have been published and reviewed.
The outcomes in these cases vary widely... but if you *believe* that something
will help you, often it does; the mind is funny that way. :-)
Some bipolar people pursue spirituality as part of their treatment/coping
regiment; others eschew it entirely.
Again: as loopy as some of this stuff might sound, you can't live someone else's
life... and the fact that the bipolar person is taking some responsibility for
his or her own care is a very promising sign.
A final note: If you're a friend, family member, or loved one of a person with
bipolar disorder, you need to remember to look out for yourself. As much as you
might love the person, don't let yourself become a financial or emotional
victim. There are family support groups and other resources available to you:
take advantage of them, and network with people who are in similar situations.
See "Resource Organizations" for groups that meet in your area.
----------------------------------------------
6.0 Resources for education and support
-----------------------------------------------
This section details Internet, print, and other resources available to
people with Bipolar Disorder and their friends and family.
-----------------------
6.1 Internet Resources
-----------------------
Mailing Lists
-------------
-- Pendulum (Mailing List)
The "pendulum" mailing list is a support group for people who have a
cyclical affective disorder (either bipolar or unipolar
depression).
Anything relating to mood disorders is fair game for discussion, including:
o Lithium treatment: methodologies and side-effects.
o Treatment with anti-depressant medications: tri-cyclics, Prozac, Zoloft, and
the like.
o Effect of MD illness on people you are close to.
o How to deal with the strange things you may have done while under the grip of
MD illness.
o Dealing with mental health professionals, particularly, what to do when you
come up against incompetence, and how to find a quality psychiatrist,
psychologist, or counselor.
o How to recognize the warning signs of an impending manic swing.
o How to recognize the warning signs of suicide.
SUBSCRIPTION POLICY: due to problems on the list in December 1995, the list has
been placed in CLOSED subscription mode (i.e. the list-owner hand-processes each
sub request). In addition, only subbed members of the list may post to the list,
with a very few exceptions. There are several things the list-owner does to
lessen the probability that dysphoric individuals bent on trolling, will pop
on/off the list:
o each sub request is held at least 48 hours before processing. o some potential
subscribers may be asked in advance if they will observe certain rules,
particularly with regard to use of alternate IDs, and use of automatic
mail-handling (e.g. forwarding) software. o users of certain ISPs from which
problems have originated, and account names which appear suspicious, may be
asked for a real name, city/state of residence, and telephone number (to verify
identity via directory assistance or direct query). If requested, this info is
discarded within 2 months of subscription.
Regular (non-3rd-party) un-subs are handled immediately by the server; there is
no wait in that case.
FOR THOSE CONCERNED ABOUT PRIVACY: please note that the Majordomo server allows
users who are registered on this list, to find out the membership of the mailing
list, via the server's "who" command. Since this list is typed
"private", users not registered on the list cannot receive this
information. Also, real names are never inserted in the list when sub requests
are manually processed. If however, this is still of concern to you, notify
pendulum-owner.
To subscribe to pendulum, send a message to:
[email protected] containing the line
SUBSCRIBE PENDULUM (e-mail address)
(To subscribe to the Digest form, substitute SUBSCRIBE PENDULUM-DIGEST above.)
-- Walkers-in-Darkness
Walkers-in-Darkness is a list for people diagnosed with various depressive
disorders (unipolar, atypical, and bipolar depression, S.A.D., related
disorders). The list also includes sufferers of panic attacks and Borderline
Personality Disorder. Please, no researchers trying to study us, etc. (Postings
are copyrighted by individual posters.)
To subscribe to walkers or walkers-digest, send a message to:
[email protected]
containing one of the following lines:
SUBSCRIBE WALKERS (your e-mail address) for the mailing list, or
SUBSCRIBE WALKERS-DIGEST (your e-mail address) for the digest.
-- MADNESS
MADNESS is an electronic action and information letter for people who experience
moods swings, fright, voices, and visions. (People Who). To subscribe, send a
message to:
[email protected]
with this command in the body of the message:
SUBSCRIBE MADNESS (first name) (last name)
USENET Newsgroups
-----------------
The two principal newsgroups of interest to people with Bipolar Disorder are:
alt.support.depression.manic (ASDM) and
soc.support.depression.manic (SSDM).
The following newsgroups may also be helpful and interesting:
alt.support.depression
alt.support.depression.seasonal
alt.society.mental-health
bionet.neuroscience
sci.med.psychobiology
sci.psychology.announce
sci.psychology.consciousness
sci.psychology.journals.psyche
sci.psychology.journals.psycoloquy
sci.psychology.misc
sci.psychology.personality
sci.psychology.psychotherapy
sci.psychology.research
sci.psychology.theory
soc.support.depression.crisis
soc.support.depression.family
soc.support.depression.misc
soc.support.depression.seasonal
soc.support.depression.treatment
World Wide Web Sites
--------------------
The gold standard for bipolar-related Web sites is Pendulum Resources,
maintained by Doug Barlow ([email protected])
and found at:
http://www.mindspring.com/~hugman/pendulum
Doug links to many related sites as well.
Another terrific site is Dr. Ivan K. Goldberg's "Depression Central"
at:
http://www.psycom.net/depression.central.html
Both of these sites are regularly and conscientiously maintained and contain
numerous outside links.
----------
6.2 Books
----------
Q: What are some good books to read about bipolar disorder?
A: Everyone has their own favorites. The ones that are most often mentioned or
recommended are:
"A Brilliant Madness" by Patty Duke and Dr. Gloria Hochman "An
Unquiet Mind" by Dr. Kay Redfield Jamison "The Depression
Workbook" by Mary Ellen Copeland "Touched With Fire" by Dr. Kay
Redfield Jamison "Questions and Answers about Depression and Its
Treatment" by Dr. Ivan Goldberg
The standard medical textbook on bipolar disorder is "Manic Depressive
Illness" by Frederick Goodwin and Kay Redfield Jamison.
Full references for these books, and many more, can be found below. The
following list of books has been derived from various sources, including Joy
Ikelman's Media File. (To obtain the latest version of the Media File--a
listing of books, movies, tapes, plays, and other media resources of interest to
folks with bipolar disorder, send e-mail to Joy at [email protected].)
*****************************************
Title: A Brilliant Madness: Living with Manic Depressive Illness
Author: Patty Duke (Anna Pearce) and Dr. Gloria Hochman
Publisher: Bantam Books; 1992
ISBN: 0-553-07256-0
Comments: Patty Duke's very personal account of her struggle with
manic-depression. Duke writes every other chapter, while Hochman writes about
the more clinical aspects of manic-depression.
Title: The Broken Brain: The Biological Revolution in Psychiatry
Author: Nancy Andreasen, M.D., Ph.D.
Publisher/Year: Harper-Perennial; 1984
ISBN: 0-060-91272-3
Comments: Scientific theories on biochemistry, brain function and biophysics of
neurotransmission. Language is semi-technical but meant for the layperson.
Title: A Brotherhood of Tyrants: Manic Depression and Absolute Power
Authors: D. Jablow Hershman & Julian Lieb
Publisher/Year: 1994
ISBN: 0-87975-888-0
Comments: The authors consider tyranny as the product of bipolar disorder
(especially mania) together with ruthlessness, ambition, paranoia, and other
charming qualities. The approach is interdisciplinary, combining psychiatry and
history. They present biographies of the public and private lives of Napoleon,
Hitler, and Stalin.
Title: Call Me Anna; The Autobiography of Patty Duke
Author: Patty Duke (Anna Pearce) (with Kenneth Duran)
Publisher/Year: Bantam Books, 1987
ISBN: 0-553-05209-9
Comments: Patty Duke's autobiography.
Title: Creative Brainstorms: The Relationship Between Madness and Genius
Author: Russell R. Monroe, M.D.
Publisher: Irvington Publishers, Inc. 740 Broadway, NY NY 10003
ISBN: 0-8290-1769-0
Comments: Robert Lowell and Ernest Hemingway are the main persons the
author uses as examples of artists with manic-depression.
Others are mentioned: Ezra Pound, Mary Lamb, Virginia Woolf.
Title: The Depression Workbook: A Guide for Living with Depression and
Manic Depression
Author: Mary Ellen Copeland
Publisher: New Haringer Publications; 1992
ISBN:
Comments: A detailed overview of the history, causes and treatment of mood
disorders. Offers step-by-step, self-help guidance for taking responsibility for
your own wellness; using charts to track and control your moods; find
appropriate mental health professionals; build a support system, increase your
self-confidence and self-esteem; using relaxation, diet, exercise and
full-spectrum light to stabilize your moods; and avoid conditions that can
exacerbate you moods swings. "An essential tool to assist people struggling
with depression and mania to gain insight to actively enter a lifelong journey
of healing and wellness."
Title: Depression: The Mood Disease
Author: Francis M. Mondimore, M.D.
Publisher/Year: Johns Hopkins University Press, 1990
ISBN: 0-801-83856-8
Comments: Contains-- Symptoms, Diagnosis, and Treatment (Mood, Depression,
Bipolar Disorder), Variations, Causes, and Connections, and Getting Better. From
the jacket: "Dr. Mondimore's book reduces the complexities of this baffling
and very common illness to terms the general reader can understand. Having been
treated for manic-depression for more than ten years and considering myself
something of a lay expert, I was pleasantly surprised at how much this book
increased my own knowledge of the subject."
--Thomas M. Posey, President, National Alliance for the Mentally Ill.
Title: Diagnostic and Statistical Manual of the American Psychiatric
Association (DSM-IV)
Publisher/Year: Version IV; American Psychiatric Association, 1994
ISBN: 0-89042-062-9
Comments: Lists all mental illnesses and diagnostic criteria and assigns a
coding system. Fascinating reading.
Title: The Emotional Pharmacy
Author: Roberta Morgan
Publisher/Year: Body Press, 1988
ISBN: 0-895-86709-5
Comments: Covers psychological problems treatable with psychoactives as well as
recreationals and their affect on brain chemistry and
behavior.
Title: The Essential Guide to Psychiatric Drugs
Author: Jack Gorman
Publisher/Year: St. Martin's Press; 1992
ISBN: 0-312-06967-7
Comments: Discussion of psychiatric drugs, info about side effects, and
practical tips, in non-technical language.
Title: Feeling Good: The New Mood Therapy
Author: David Burns, M.D.
Publisher/Year: Signet; 1980
ISBN: 0-451-16776-7
Comments: Self-help cognitive therapy techniques for depression, anxiety, etc.
Title: The Feeling Good Handbook
Author: David D. Burns, M.D.
Publisher/Year: Plume; 1989
ISBN: 0-452-26174-0
Title: Fire in the Brain: Clinical Tales of Hallucinations
Author: Ronald K. Siegel
Publisher/Year: E.P. Dutton, NY; 1992
ISBN:
Comments: Siegel is a professor at UCLA School of Medicine's Department of
Psychiatry and Behavioral Sciences. Studies of various hallucinatory
experiences, including sleep disorder states.
Title: The Good News About Depression
Author: Mark S. Gold
Publisher/Year: Bantam; 1986
ISBN: 0-553-34511-7
Comments: Nontechnical discussion of depression as a biochemical illness.
Title: The Good News About Panic, Anxiety and Phobias; Cures, Treatments and
Solutions in the New Age of Biopsychiatry Author: Mark S. Gold, M.D.
Publisher/Year: 1989
ISBN:
Comments: How biological mimickers can cause psychiatric symptoms, caffeine,
sunlight, OCD, medications, tests, MAO levels, etc. Lists resources by state and
contains a bibliography.
Title: Graedons' Best Medicine from Herbal Remedies to High- Tech Rx
Breakthroughs
Authors: Joe and Teresa Graedon
Publisher/Year: 1991
ISBN:
Comments: Very readable, nontech reference book with useful inserts on such
topics as "Drug-induced Insomnia." Has separate chapters on "High
Anxiety," "Mind Matters," and others.
Title: How to Cope with Depression - A Complete Guide for You and Your Family
Author: J. Raymond DePaulo, Jr. M.D. and Keith Russel Ablow, M.D.
Publisher/Year: Ballantine Books; 1989
ISBN: 0-449-21930-5
Title: Impressive Depressives
Author: Peter Nolan Lawrence
Publisher/Year: 1994
ISBN: 0-95-22806-04
Comments: The author is bipolar, himself. Lawrence cites 75 bipolar people
including Bach, Beethoven, Rossini, JMW Turner, Dumas, Shelley, Byron, Lincoln,
Edison and the author himself. Published in aid of the (U.K.) Manic Depression
Fellowship.
Title: Key to Genius: Manic Depression and the Creative Life
Author: D. Jablow Hershman & Julian Lieb
Publisher/Year: Prometheus, 1988
ISBN:
Comments: A discussion of imagination, manic depression, and a few famous people
of the past as examples.
Title: Listening To Prozac
Author: Peter D. Kramer, M.D.
Publisher/Year: Viking; 1993
ISBN: 0-670-84183-8
Comments: A psychiatrist explores some of the implications of anti- depressants,
and especially of Prozac's unusual effects on the personality. Kramer also
discusses the recent research on depression, as well as several other issues
which seem linked to depression.
Title: Lithium Encyclopedia for Clinical Practice
Authors: J.W. Jefferson, J.H. Geist, D.L. Ackerman, J.A. Carroll
Publisher/Year: American Psychiatric Press, Inc., Washington, DC 1987
Comments: This book addresses the action of lithium, its interaction with other
drugs, its effects on other conditions, side effects, and practical advice for
use.
Title: The Looney Bin Trip
Author: Kate Millett
Publisher/Year: Simon and Schuster, NY, 1990
ISBN: 0-671-67930-9
Comments: Miller is manic depressive. She writes of her experiences in mental
hospitals in the U.S. and Ireland, and of her life in setting up a woman's
cooperative. Controversial reading.
Title: Lost Puritan: A Life of Robert Lowell
Author: Paul Mariani
Publisher/Year: W.W. Norton & Co., NY, 1994
ISBN: 0-393-03661-8
Comments: A very readable biography of Robert Lowell, poet, using hundreds of
Lowell's unpublished manuscripts and letters, and dozens of interviews. Fully
covers Lowell's manic depressive episodes and how they affected his life. Also
gives a window into treatment of manic depression in the 1950s and 60s.
Title: Manic Depression: Illness or Awakening
Author: Robert E. Kelly
Publisher/Year: Knowledge Unlimited Publishers, 1995
Title: Manic-Depressive Illness
Author: Fredrick K. Goodwin, M.D., & Kay Redfield Jamison, Ph.D.
Publisher/Year: Oxford; 1990
ISBN: 0-195-03934-3
Comments: This is THE medical textbook for manic depression. It is technical,
but excellent. Highly recommended.
Title: Medicine and Mental Illness; the Use of Drugs in Psychiatry Authors:
Marvin E. Lickey and Barbara Gordon
Publisher/Year: W.H. Freeman & Co., NY, 1991
ISBN: 0-7167-2196-1 (soft)
Comments: Provides an overview of drug therapies for varying forms of mental
illness.
Title: Mind, Mood, and Medicine: A Guide to the New Biopsychiatry
Author: Paul H. Wender, and Donald F. Klein
Publisher/Year: Farrar, Straus, Giroux, Pub., 1981
Comments: Non-technical, goes into the biological bases of psychiatric
illnesses, and also treatments (as of 1981).
Title: Moodswing
Author: Ronald Fieve
Publisher/Year: Bantam Books, 1989 (Revised)
ISBN: 0-553-27983-1
Comments: A "classic." Contains information and anecdotal stories
about depressives and manic depressives; by the individual who spearheaded
lithium therapy.
Title: 9 Highland Road
Author: Michael Winerup
Publisher/Year: Pantheon Books, 1994
ISBN: 0-679-40724-3
Comments: (jacket notes) "An unprecedented and riveting account of
the life and lives of a group home for the mentally ill: the residents, their
families, and the counselors, social workers, and psychologists which whom they
work." Includes struggles with illnesses plus the struggle with
bureaucracies in keeping the home alive. Excellent book for those interested in
patient advocacy.
Title: On the Edge of Darkness: Conversations about Conquering Depression.
Author: Kathy Cronkite
Publisher/Year: Doubleday; 1994
ISBN: 0-385-42194-X
Comments: Features a variety of personal stories about unipolar and bipolar
disorder, including those of some famous, living people.
Title: Overcoming Depression
Author: Dimitri F. and Janice Papolos
Publisher/Year: Harper-Perennial; 1992. (revised)
ISBN: 0-060-96594-0 (paper)
Comments: Good basic text on the various aspects of depression and
manic/depression. Considered by some to be a "classic" in the field.
Title: Physicians' Desk Reference, 49th Edition (also in paperback, in
condensed version)
Medical Consultant: Arky, Ronald, M.D.
ISBN: N/A
Comments: The standard guide to prescription drugs for physicians. Usually
referred to as "The PDR."
An expensive, but worthwhile investment for anyone who's ever been< told that
ANY drug is "perfectly safe" or "without side-effects".
Cross-indexed by manufacturers brand names, generic names, product
identification guide, product information, and diagnostic information. A
"must-have" for anyone who wishes to be an informed consumer.
Title: The Pill Book
Editor: Lawrence Chilnick (editor)
Publisher/Year: Bantam Books, NY; (6th Edition, paperback)
ISBN: 0-553-29463-6
Comments: An illustrated guide to the most-prescribed drugs in the United
States. Invaluable resource. Unlike the PDR, where the information is supplied
by drug manufacturers, The Pill Book has been compiled by an independent panel
of doctors and researchers. HIGHLY RECOMMENDED.
Title: Questions and Answers about Depression and its Treatment
Author: Dr. Ivan Goldberg
Publisher/Year: The Charles Press; 1993.
ISBN: ISBN 0-914783-68-8
Comments: A 112 page FAQ on depression & manic depression. Covers all
aspects. HIGHLY RECOMMENDED. If your bookstore doesn't have this one, ask them
to order it.
Title: Receptors
Author: Richard M. Restak, M.D.
Publisher/Year: Bantam Books, NY; 1994
ISBN: NA
Comments: "The author is an M.D. who also suffers from unipolar depression.
Although he's not anti-med, he doesn't claim that medications will solve
everything either. He writes about how our neurological receptors work and about
how they affect how we feel. Although the book is detailed, it's not so
technical that you need a PhD to understand what he's saying. He provides a
history of how the different receptors were discovered, and also discusses how
alcohol, caffeine, nicotine, heroin, cocaine, and prescription drugs effect us.
One chapter is devoted to the discovery of lithium and discusses how it is used
to treat people with manic depression."
Title: This for Remembrance; The Autobiography of Rosemary
Clooney
Author: Rosemary Clooney, with Raymond Strait
Publisher/Date: Simon & Schuster, NY, 1977
ISBN: 0-671-16976-9
Comments: Clooney is bipolar; the first three chapters detail the manic
episode which led to her hospitalization.
Title: Touched with Fire: Manic-depressive Illness and the Artistic Temperament
Author: Kay Redfield Jamison
Publisher/Year: Free Press: Maxwell Macmillan International, 1993.
ISBN: 0-0291-6030-8 (cloth) 0-060-96594-0 (paper)
Comments: A look at a number of 19th century poets, writers, and composers who
were bipolar. Comment by Dr. James D. Watson, Director of Cold Spring Harbor
Laboratory, Novel laureate and author of The Double Helix: "An emphatic
analysis of the creativity that emerges from a little madness and the horror
from too much." Highly recommended.
Title: True North: A Memoir
Author: Jill Ker Conway
Publisher/Year: Alfred A. Knopf, 1994
ISBN: 0-679-42099-1
Comments: A memoir that includes, in part, her learning to cope with her
husband's manic-depressive disorder.
Title: Understanding Depression
Author: Donald Klein, M.D., and Paul Wender, M.D. (founders of the
National Assn. for Depressive Illness)
Publisher/Year: Oxford; 1993
ISBN: 0-195-08669-4
Comments: Melvin Sabshin, M.D., Medical Director, American Psychiatric
Assn. writes: "A very good source of information that will be
extraordinarily useful to patients and their families."
Title: An Unquiet Mind: A Memoir of Moods and Madness
Author: Kay Jamison
Publisher/Year: Alfred A. Knopf, 1995
ISBN: 0-679-44374-6
Comments: Kay Jamison's autobiography. Jamison, a renowned and respected
researcher in the field of manic depression, is bipolar. This small book is
easily readable and recommended.
Title: Waking Up, Alive
Author: Richard Heckler
Publisher/Year:
ISBN:
Comments: A recommended book about the subject of suicide.
Title: The Way Up From Down
Author: Priscilla Slagle, M.D.
Publisher/Year: NA
ISBN: 0-312-92914-5
Comments: It stresses a nutritional approach heavy on the amino acid tyrosine,
and a complete vitamin supplement program. May work for people with less
difficult forms of depression.
Title: We Heard the Angels of Madness: One Family's Struggle with Manic
Depression
Authors: Diane and Lisa Berger
Publisher/Year: Morrow, 1991
ISBN: 0-688-09178-4
Comments: Forwarded by Alexander Vuckovic, M.D. Written by a mother who had a
son stricken by manic-depression at 19 and the rough road they walked to get him
the help he needed.
Title: What to do During Depression: A Reason to Live
Author: Melody Beattie (General Editor).
Publisher/Year: Tyndale House Publishers, Inc.; 1992.
ISBN: 0-8423-0988-8
Comments: This is a book that explores reasons to live and reasons not to commit
suicide. It also contains suggestions for life- affirming actions people can
take to help themselves get through those times when they're struggling to find
a reason to live.
Title: What You Need to Know About Psychiatric Drugs
Author: Stuart C. Yudofsky,M.D.; Robert E. Hales,M.D.; and Tom Ferguson,M.D.
Publisher/Year: Ballantine; 1991
ISBN: 0-345-37334-0
Title: When the Blues Won't Go Away
Author: Robert Hirschfeld, M.D.
Publisher/Year: 1991
ISBN: 0-025-51825-9
Comments: Concerns new approaches to Dysthymic Disorder and other forms of
chronic low-grade depression.
Title: Winter Blues: Seasonal Affective Disorder and How to Overcome It.
Author: Norman Rosenthal, M.D.
Publisher/Year: The Guilfold Press; 1993
ISBN: 0-898-62149-6
Title: X Ray
Author: Ray Davies
Publisher/Year: 1995
ISBN:
Comments: Tells Ray Davies own tales of his life up through the early 1970s. It
is done in a semi-fictional style. Davies, a founding member of the English band
The Kinks, is openly manic-depressive.
Title: You Are Not Alone
Author: Julia Thorne with Larry Rothstein
Publisher/Year: Harper Collins; 1993
ISBN: 0-060-96977-6
Comments: The writings of depressives, for both depressives and those who need
to understand them. Shervert Frazier, M.D., former director of the National
Institutes of Mental Health says: "A ground breaking book that...reveals
the impact of depression on the lives of everyday people. This little book is
must reading for sufferers, those associated with depression, and mental health
professionals"
Title: You Mean I Don't Have To Feel This Way?
Author: Collette Dowling
Publisher/Year: Bantam Books; 1993
ISBN: 0-553-37169-X
Comments: Jeffrey M. Jonas, M.D. writes: "An important book that is filled
with information helpful to sufferers of mood and eating disorders and other
illnesses. It should be read not only by lay people but also by professionals
who deal with these illnesses."
*** 6.3 Magazine and Journal Articles
***********************************************
* Section under construction - BC *
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*** 7.0 Controversial Issues - making sense of them
***********************************************
* Section under construction - BC *
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*** 7.1 To drug, or not to drug?
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* Section under construction - BC *
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*** 7.2 Should I participate in a study or other
research program?
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* Section under construction - BC *
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*** 7.3 How do I evaluate "alternative" therapies?
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* Section under construction - BC *
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----------------------------------------
7.4 The Psychiatric Survivors' Movement
-----------------------------------------
The following information was supplied by David Oaks ([email protected]) of the
Support Coalition, and is abstracted from the Support Coalition FAQ:
Since the very origins of psychiatry, psychiatric survivors have individually
resisted human rights violations and sought humane alternatives. In the past 25
years, however, a small wave of diverse organized groups, networks,
publications, conferences have sprung up and connected internationally.
Sometimes called the "psychiatric survivors liberation movement," or
the "mental health consumers movement," or even just "mad
lib," you are near a gateway reaching some of the most incredible examples
of
sheer human survival.
The sisters and brothers in our movement survived lock-ups
and forced shock. Forced drugs and labels. Homelessness
and solitary confinement. And yet still they have
continued to resist, to remember the many killed by
psychiatry. We've continued to laugh, cry, rant -- but
never stay silent -- directly in the face of the 20th
century's most brutal high-tech attempts at mind control.
Support Coalition is an independent alliance of 30 of these grassroots groups in
the USA, Canada, Europe and New Zealand. Several of Support Coalition's key
leaders have been front-line grassroots activists who have kept the candle of
struggle lit for over two decades. Dendron News is Support Coalition's voice.
Dendron is a "madness network newspaper" that now reaches 15,000
people internationally.
"Dendrites" are our electronic human rights alerts, sent out on the
Internet intermittently. "Dendrite" is a free one-way low- volume
Internet mailing list. To subscribe just e-mail to [email protected] with just
these words in the body of your message:
subscribe dendrite
"Dendron" is different because it's our hard-copy NEWSPAPER.
We have a web site! The URL is as follows:
http://www.efn.org/~dendron
There's also a free, anything-goes, for-fun mailing list on "healing
normality." You can join that by e-mailing [email protected] with just
these two words in the body of your message:
subscribe healnorm
*** 7.5 Critics of Psychiatry and Psychology
***********************************************
* Section under construction - BC *
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*** 8.0 Is there life (and hope) after diagnosis?
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* Section under construction - BC *
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*** 8.1 Coping hints from readers and participants
***********************************************
* Section under construction - BC *
***********************************************
*** 8.2 Research trends and directions
***********************************************
* Section under construction - BC *
***********************************************
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